purpletigron: In profile: Pearl Mackie as Bill Potts from Dr Who (Default)
[personal profile] purpletigron
What feeling? That feeling that Life wants more out of me than I have to give.

I feel wiped out by doing my duty - with nothing left for myself - and yet, with duties still undone.

I feel as if my only two choices are to push myself to collapse, or let everything else collapse now.

A key factor in all this exhaustion is the transfer of my mother's care from the hospital to the GP team. I've been failing for weeks to even get to speak to a member of my mother's new team. None of them seems to have a proper overview of her condition and her history any more, either.

One way in which I am my own worst enemy: I mis-pace myself at work, giving too much and leaving myself with too little for the rest of the week. But my best hours are 07:00 - 15:00 daily, and so-called 'normal full time hours' steal most of that time. I'm rapidly coming to the conclusion that I now need at least one weekday per fortnight set aside from paid work for my unpaid caring work with my mother.

But my current employer has already declined a request from me for part-time working.

Date: 2008-07-06 04:19 pm (UTC)
juliet: Artist's impression of the Herschel infrared satellite (work)
From: [personal profile] juliet
Could you try to negotiate some variety of flexi-time, where you make up 8 hrs per fortnight by working an extra hour daily? Or did they give reasons for turning your request down that you can find solutions to?

The other question is: how committed are you to your current employer?

Date: 2008-07-06 04:54 pm (UTC)
From: [identity profile] purpletigron.livejournal.com
We only have unofficial flexitime, on a very ad hoc basis. The reasons given are variants on the fact that my employer is small and skint.

Date: 2008-07-09 11:36 am (UTC)
juliet: (Default)
From: [personal profile] juliet
Might it be worth trying to negotiate something more formal in the flexitime?

If your employer is small & skint, then presumably what they're saying is (roughly): we need a FT equivalent person, and we can't afford to get someone else to do your work for one day a week. If you're able to do your existing work/hours in fewer days, might that fly with them? If you're customer-facing in any way it probably won't, as in that case you're being paid to some extent for hours-with-bum-on-seat. If you're not customer-facing, and you don't deal with urgent queries on a daily basis, then you can argue that they're paying you for results, rather than for your physical presence, and 9 days/fortnight with same fortnightly hours would meet that requirement.

You could also suggest a trial period for 3-6 months with a scheduled/agreed review date at the end of that where both you and your manager can agree that it's either working or not working.

Date: 2008-07-06 04:22 pm (UTC)
From: [identity profile] ms-cataclysm.livejournal.com
do you think that some of this may be the vitamin B12 deficiency?

Date: 2008-07-06 04:55 pm (UTC)
From: [identity profile] purpletigron.livejournal.com
I hope so, in that it's treatable and being treated. But I can't say for sure. I'm not yet overtly deficient by NICE guidelines, but that of course is meaningless ;-)

Date: 2008-07-06 08:30 pm (UTC)
ext_13894: Valknut (Default)
From: [identity profile] rhionnach.livejournal.com
You may have already looked at this but Carers UK is a national organisation who are looking into this sort of thing. You might want to look at http://www.carersuk.org/Newsandcampaigns/makeWORKwork

Date: 2008-07-07 07:05 am (UTC)
From: [identity profile] vgnwtch.livejournal.com
CarersUK are fantastic.

Also, does your mother get Disability Living Allowance (or Attendance Allowance if she's over 60)? If not, why not apply? She clearly cannot look after herself. And if she is awarded DLA/AA, you can get Carer's Allowance as her primary caregiver (you do NOT have to live together for this). Look up DialUK and see if you have a local disability information bureau or support office where they can help you with the paperwork (47 pages for the DLA/AA application isn't the problem - it's that the form looks like it's straightforward, but the criteria aren't what they look like from the form, so it's important to have someone with a good track record on this to help you). They may also have good information on services available to you locally, including help with care, social stuff for Mater that isn't overwhelming, etc.

Once you've got this benefit sorted and awarded, it's a gateway to other help from your local and national services. If your mother needs a full or part time person to be with her and help her, she may qualify for direct payment to employ a personal assistant of her choice. If she's resistant, it could be couched more as a PA/admin assistant than carer - she'd be the employer, rather than dependent.

I don't know how your mother feels about MIND, but I think they are bloody wonderful, and they have local offices all over the country.

You may find the local CAB can give you info on options. Our bureau has a mental health advocacy team which is hospital based, but they take self-referrals - yours might, too. They'd be in a position to refer you to all the right support networks in your area.

Carers need support just as much as anyone else - more, perhaps. Everything or collapse is not the only option. There are other, better options out there, and you must look after yourself. Please seek out the people who can help you and Mater get proper support.

Date: 2008-07-09 06:01 am (UTC)
From: [identity profile] purpletigron.livejournal.com
Mater has another 6 months left of a two year support package from MIND, which has been a vital element in her ability to live outside of hospital.

I think it would be great if I could get her to employ a part-time PA to take over much of what I'm currently doing for her! We'll see ...

Sounds like I need to talk to DialUK and CAB too. Thanks!!!

Date: 2008-07-06 10:55 pm (UTC)
From: [identity profile] brian1789.livejournal.com
That sounds intense... I'd ask if you wanted to meet up next week sometime while I'm over there, but you sound very busy. (hug)

Date: 2008-07-09 06:02 am (UTC)
From: [identity profile] purpletigron.livejournal.com
Well, it's true that I'm busy ;-)

How are your plans shaping up?

Date: 2008-07-09 09:30 pm (UTC)
From: [identity profile] brian1789.livejournal.com
To London tomorrow, pick up a rental car and drive to Bath Saturday, York Sunday, Scotland Monday - Wednesday, then home from Edinburgh...?

Date: 2008-07-07 10:07 am (UTC)
From: [identity profile] ashestothestars.livejournal.com
Sending a hug your way. Sounds like your plate is very full ATM.

Date: 2008-07-09 06:02 am (UTC)
From: [identity profile] purpletigron.livejournal.com
Uh-huh! Thank you :-) Oooh! I think I just recognised the eyes in your userpic!
Edited Date: 2008-07-09 06:03 am (UTC)

Date: 2008-07-09 06:05 am (UTC)
From: [identity profile] ashestothestars.livejournal.com
Ianto Jones (or David Gareth-Lloyd) :)

Date: 2008-07-07 01:16 pm (UTC)
From: [identity profile] sammywol.livejournal.com
Oh love! Life doesn't ever seem to give you breathing room. I'm here if ever you need someone to howl at. I just wish we were closer and able to be of more practical use.

Date: 2008-07-09 06:03 am (UTC)
From: [identity profile] purpletigron.livejournal.com
*hugs* You too! Closer would be Of The Good!

Date: 2008-07-08 05:48 pm (UTC)
From: [identity profile] blue-dormouse.livejournal.com
*Hugs* (Human and feline)

Date: 2008-07-09 06:03 am (UTC)
From: [identity profile] purpletigron.livejournal.com
I'm cuddling Wong! as I type! *hugs*

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